This part is geared more to the men who are reading this. Not that this particular subject does not affect women but more men have reported this to me than women. Crohnsandme gentlemen if you are currently taking steroids for your disease it may and can affect your ability to perform and your performance itself. But know that I have heard of some tactics from my male patients on how to combat this or at least get some assistance.
I was not responding to the usual medications prescribed for my apparent condition and was then put on steroids again which seemed to be having little affect. All in all the situation was difficult and again there seemed to be nowhere to turn to and no one out there for support. All the while I was hiding this from the world.
The first thing that you have to understand it that after surgery your surgeon will inform you of the time line that you need to recover before having intimate relations. But after that you Crohnsandme need to understand that your insides are still rather sensitive and you are still inflamed inside and may be even swollen. That alone can cause pain during sexual intercourse. Know that it is not uncommon even if it is passed the date given by your doctor. If it persists I do recommend letting your doc know. Second part of this and this is where technically speaking your placement of your bag comes into play. Very few and I mean very few patients have reported that even after a long time the experience is somewhat uncomfortable.
I do not want to leave to much information right now simply because I am sifting through it myself and will be meeting with my Doc at the end of April to see how much of this is viable and real. And honestly what it all means. But I do not want to get ahead of myself. I will let you know.
The fact is that if you are on Remicade your disease had progressed significantly enough that you need something as hardcore as a TNF inhibitor. I am a believer in getting the best possible result. What Crohnsandme totally throws me is that so many people and doctors knowing what kind of reactions can happen are doing little to prevent the reactions by not prescribing premeds or patients refusing to take them. Honestly I do not get the resistance on both parts. If it allows you to get the maximum benefit and time line out of the drug why not Then there are the other people who do not even know about premeds. I can tell you that I have not had one reaction since my infusion started. I may be a little out of it after the infusion get headaches etc but the fact that I have been on it free and clear for just short of the 10 years tells me that my docs line of first defence has worked.
The only reason that the doctors could come up with for my sudden decline was pouchitis a slang term used to describe a chronic and ongoing infection in the bag. I underwent a number of hospitalizations and medicinal cocktails to try and curb the infection but nothing seemed to be working. I was not willing to give up or give in.
Understand that your partner may hide some of their feelings as not to make you feel bad and that is because they care and they are scared as well. If you are in the thick of it all and about to go Crohnsandme through surgery they may not even be able Crohnsandme to articulate how they are feeling because they are just so scared for you and all they want is for you to be okay. Some partners will make it through this others will not I will not lie to you.
A premed is a drug given in this case prior to the infusion of Remicade. I currently take Gravol for those of you not in Canada it is an anti-nausea drug I take Benadryl an antihistamine and I take a form of Prednisone. I also take Crohnsandme two regular strength Tylenols as well.
Who the heck would want to have
sex with someone with something hanging from their waist??
AND if I can’t stand to look at myself why would anyone else want to? This feeling is just way too big to go into on here but rest assured I have been there understand it and tons of people I have counselled have felt this way! Most of them through conversations I have been able to help move on from this point and are having great sex but some well some are just not there yet and that is okay. The second reason is because of meds and overall health conditions. Look what you have been through! Your libido just may not have kicked back in and that is understandable. The other thing is that some of the meds you are on may be suppressing it! So do not be so hard on yourself.
Very few and I mean very few patients have reported that even after a long time the experience is somewhat uncomfortable. Some of them had not even had sex again yet but noticed it with a tampon. Sorry men had to go there There is apparently a very non-invasive treatment from what I understand. Again talk it over don’t ignore it. Resection/ no bag/ no surgery at all. This section will lump together some issues.
More and more I read and hear about patients having reactions to Remicade infusions. Whenever I ask the question if they had been on premeds almost 99%
of the time they have not been. Not only that but many of them are reporting that they are having their infusions run as fast as possible which can also contribute to a reaction.
Please talk to your doctor and ask why he or she would not want you to have them. Feel free to contact me. Let’s talk about sex! Yes I know it may be a taboo subject and I will try to not to get into the nitty gritty of it all but I cannot tell you how many people I counsel who are afraid to bring it up! When they finally do there is this huge sigh of relief and we
are able to talk openly and honestly about some of the issues they may be experiencing or their partners around the whole subject.
There is two reasons that this can be happening well there can be a dozen reasons but here are the top two. Who the heck would want to have sex with someone with something hanging from their waist?? AND if I can’t stand to look at myself why would anyone else want to? This feeling is just way too big to go into on here but rest assured I have been there understand it and tons of people I have counselled have felt this way! Most of them through conversations I have been able to help move on from this point and are having great sex but some well some are just not there yet and that is okay. The second reason is because of meds and overall health conditions.